Wednesday, August 24, 2011

This and That.

We've had a lot going on since my last post. I'll try to be brief.

After another round in the sound booth we were told that Jet doesn't have a hearing loss. So after years of inconsitent hearing tests we will be headed to Oklahoma City in September to have an ABR. This test should have been ordered at birth and would have been very simple; however, now that he is 3.5 it is considered an operation and he will go under general anesthesia.
Jet is also scheduled to go under general anesthesia in September to have several fillings done. Because of his Developmental Delay it would be impossible to have fillings done in the dentist office.
And what I am most worried about.... Jet has been having milk and other drinks come out of his nose. This was one of the warning signs that they gave us that would indicate that his palate wasn't long enough. We will meet with his Oral Surgeon in September. I am extremely nervous about this appointment and would appreciate all the prayers that you can throw our way.
So needless to say we will be going back and forth to Oklahoma City a lot in September.

This mama is getting very anxious about what the future holds for my sweet boy. I have seasons of worry and anxiety for Jet. I'm in one, just in case you're wondering. Trying not to get lost in the sea of "what-ifs." 

With all that being said we really did enjoy our last few weeks of Summer. My two boys are in school now and our busy busy school days have begun. Here are a few pictures that capture our last couple of weeks. Hope you enjoy them. And in spite of my anxious heart, I really am Confident of His Goodness.

Lela

 Will taking car of "Sox" one of his best buddies puppies.

 Lunch Time at the Patton House.

 Ani got creative with the Sharpie. 

Potty Time!!! (Did I mention she's a ham.)

 The Boys in their matching Tighty Whities playing wii.
 Just in case you didn't know, I don't dress my children unless necessary in the summer time.
 
 Sam Noble Museum. Will loves being the Big Brother. He takes a lot of pride in that role.

 When Will grows up he wants to be a "Dinosaur Hunter" or a paleontologist. He knows the difference: Dinosaur Hunters kill dinosaurs and a paleontologist digs for bones. So here is getting a little practice at paleontology. 

 Will's First Day of Kindergarten. 

(Sorry it's sideways.) Jet's First Day of 3-year-old PreK.

Sunday, August 7, 2011

Surprise!!!

From the beginning Jet has been full of surprises. 

God put Jet in my tummy when Will was 15 months. We were not trying to get pregnant at the time, but we were of course open to God's plan. And from that time on, we've had to stay open to what God has planned for Jet. Because I assure you, nothing about Jet has gone as planned. 

We decided to wait till Jet was born to discover his sex. I thought I was going to have a girl because it was very obvious to me that whatever was inside of me was the total opposite of Will. I was right in one aspect, he is the opposite of Will in most every way but his sex. So Surprise... Jet's a boy.


If I seem teary eyed in this picture it's because I was. Jet had another surprise, he was born a little different than most babies. At the time, we had no idea the special challenges that our little bundle of joy would face.


We didn't know it at the time, but Jet was probably born with a hearing loss. Surprise. He had difficulty passing his newborn hearing screening, but did end up passing it. From that point on, we had his hearing checked at least 2 or 3 times a year. Something that is very common for babies born with clefts. He's had a million set of tubes put in and alway had difficulty passing his hearing tests - but somehow he seemed to squeak by. Until recently....


If I would have been told at the time that my son had a hearing loss, I think I would have literally fallen apart. Those first few months I had a difficult time keeping myself put together to begin with.


So here we are with Jet a few months away from 4-years-old. Time truly does fly. And it brings a tear to my eye looking back at these baby pictures. Some things just aren't fair in life and there is a part of me that feels that Jet has been cheated out on a lot of things.

But this I am sure of... God's timing is perfect. A month or so ago when Jet was diagnosed with a hearing loss, I didn't even shed one tear. To be honest, I had hope. I am praying that this diagnosis will help Jet find his voice.

Jet picked out orange hearing aids. They'll match all of OSU outfits just perfectly. He seems to be adjusting to them fairly well.

I am grateful for all the "professionals" that God has given us in this journey. I love his audiologist and I am hopeful that "sound" will be a huge benefit to Jet.

Will you please join in praying with me that our little orange beauties will help Jet to talk and that he will enjoy wearing them?

Confident of His Goodness,
Lela